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Challenges in the treatment of severe Crohn’s disease

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In this presentation from the Clinical Track at the 2018 Advances in Inflammatory Bowel Diseases, Dr. David T. Rubin discusses common difficulties encountered in the treatment of severe Crohn’s disease.

© 2018 Imedex, an HMP Company

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  1. I went to 11 diff drs and they didnt help me. I cured myself of crohns disease .in my case it was caused by fungus..Saccharomyces cerevisiae. I did ton of research but drs did nothing .in one article i saw that 75% of patients have Saccharomyces cerevisiae. .. Since drs couldnt cure me i ordered a Dr to give me every test for ffungus bacteria..but she told me insurance would start asking questions ,clearly doctors don't give a fuck about patients.i asked if there is a rare disease Dr n sbe told me there r infectious disease drs .i didnt know that since nobody told me .i had a referral to a disease Dr ..i told him i have Crohn's.disease and i want you to find a bacteria or fungus in my body..guy ran few tests ,week later i come back n said Chris in amazed but you were right you have Saccharomyces cerevisiae ( fungus in your blood) he told me but the bad news is i dont have drugs that will kill this type of fungus .it will ruin your kidneys liver n other organs..i was excited n lil sad ..sad because he didnt give me drugs. Why excited?? Because i knew what was causing my disease n was happy to know and thn i knew that my goal was to take care of myself live healthier life.. I also tested for vit d deficiency n i was in critical range ..i started taking vit d3 50k about 40 pills. 1- 3 pills A week .sometimes one wen i was like maybe its too much let's back off this week , other weeks upto 3….and i was taking also diff brand d3 5k ius. Whole bottle .in 4 months..both the 5k ius..and 50k ius..along with k7 for calcium as u should take it…i changed my diet for a week no bread no seeds no rice .and i felt better .waaaay better .but thn went back to eating junk food as i got depressed..later that year i went to my home country n my aunt( nurse. They worked together ) told me about this medical Dr who quit being a medical Dr n was into natural healing ..she did blood work n i didnt have fungus in blood no more felt 40% better. But Still had pains shits…She suggested we do food intolerance testing..turns out I can't eat any rice.seeds .pasta.flour products…..bananas n others .pretty much everything i was eating only daily basis..so i changed my diet 180 degrees .2 weeks later i had no pains at all..i stayed on the diet.for weeks and i stooped n discomfort would show. Up ..so I learned my guts n stomach were so fucked up I had to b on this diet of foods that I tolerated n slowly loong months later i was introducing the foods i couldnt eat till.a point where i was back to normal..also the lady told me i have very weak acid in my stomach n i need to a adress it by drinking apple cider vinegar on empty stomach for long months..
    How did i get the fungus???? SEX. Next day i woke up with my stomach rummbling loud…i new i cought something 2010…i met a new gf n she wanted to raw week later she was shitting her brains out thn we stopped unprotected sex n she went back to normal ( she constantly tans and always took vit D ) I went std clininc n all good well because stds panels dont test for fungus .i noticed my fiecies werent solid n were loose . it took years for me to go from loose to diarrhea ( 15 times a day )to Crohn's disease driving to brand new job n having a sharp pain n at that moment I knew my life was over n here i am years later feeling bad that i never wrote my story or made a video on YouTube ..If you know better n your Dr who helps you but can't cure you pls listen to your Dr who isnt curing you n don't be an asshole to me giving me negative comments

  2. My chrons has been with me since I was six doctor's say I have to do tests but the more tests I do the more skinnier I get….sometimes I feel like suicide cause my chrons is affecting my life very horribly even to now.

  3. Thank you for posting this video. I was one of those patients insisting on dietary management. Long story short I wound up in the hospital with an abscess so large that it's pushing my spine and hip out of place. I am in so much pain. It's very comforting to have access to information on my disease and the treatments that are soon to come. I'm scared for my surgery this October. And to the people in the comments with this disease that say they sometimes feel suicidal, me too… Just made an anti suicide pact with a family member a few months ago. It helped me. Hang in there guys.

  4. I’m a 26 year Crohns veteran; I was 17 years old upon my initial diagnosis ,and underwent my first surgery 3 months after my initial diagnosis and had to have a permanent ileostomy since my disease was so severe and conventional therapies were failing to bring me into remission. I’ve had several major intestinal surgeries during that time . I’m currently on Humira Pens which so far have kept me out of the hospital for nearly 2 years now and the other biologic I have ever been on since my diagnosis was Remicade which kept me in remission . I’ve been on many conventional Crohn’s therapies.

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